Tuesday, October 1, 2013

This I know...{Down syndrome}

This I know…

My sweet Kayla…There is no greater love than your love…this I know.
You are kind, sweet, loving, thoughtful, determined, intelligent, fun, happy, sassy, spunky, amazing, caring, wonderful…you are you.  And I would never change you.

Yes.  It’s true.  I have been asked numerous times…if I could take the Down syndrome away, would I?  Such a controversial “hot topic”.  Would I?  Would I take the Down syndrome out of you if I could?  No.  I wouldn’t.  Let me explain…

Yes…life would be “easier” for you in some respects if you didn’t have Down syndrome.  Even easier for me in some respects, as well, if you didn’t have Down syndrome.  But then you wouldn’t be you.

You wouldn’t be the you I know you to be.  The girl that lights up a room with her smile.  The girl that encourages others to be accepting of differences simply by being who you are.  The girl that tries harder than anyone I know to learn new things.  The girl that gets more joy from making others happy than being happy herself.  The girl that captured the heart of our Governor {who even keeps your picture on his desk}.  The girl that is memorable to those who have met you only once.  The girl that is just as sassy and spunky as any other seven year old on this earth.  The girl that just by being you, encourages others to live better.  The girl that has shown countless people that living with Down syndrome does not mean you are suffering.  The girl that applies herself with every ounce of her being.  The girl that hugs, loves and accepts every single person she meets.

Would I love more than anything for things to come a little easier for you?  Absolutely.  For you to be able to keep up with your peers?  Sure.

But then…then you wouldn’t be you.  The you that you were born to be.  The amazing and wonderful you.  So I ask myself…If not you…then who?  Who would be able to accept this amazing challenge to change the world.  Change the world.  A big ridiculously huge task that you are taking on like only you can…with the most beautiful smile on your face and sparkle in your eyes.  And believe me, baby girl...you are making a change.  One that I can't wait to see.  To be a part of.  Acceptance.  It will happen...and you will be the face of change.

So…on this the 1st day of October 2013 (the first day of National Down Syndrome Awareness Month), I am telling you this…

You, Kayla Grace Kosmalski, were perfectly made.  This I know.  Extra chromosome and all.  And yes, while you may face obstacles and challenges in life, I know that no one on this earth will handle it with more grace than you.  No one will smile more brightly than you.  No one can change the world like you.  You are the beautiful face of Down syndrome.  Of perfection.  Of acceptance.  Of love.  You are the amazingly wonderful one and only you.  And I am one proud Mommy.  One very proud Mommy.



  1. So beautifully stated Amy. Kayla is the best ever! I love her with all my heart because she is our beautiful Kayla, our perfect grand daughter!

  2. Love to read your updates. So glad you are posting again. Kayla is a beautiful, remarkable child, and the world is a better place because she is here. I can't wait to see how the rest of her story unfolds!